Pursuing Life - Despite Multiple Sclerosis - with Adventures Through the Lava Fields
Monday, July 28, 2014
Changes Along the Journey
Running at this point generally makes me a bit nauseous. I am hopeful that starting gabapentine will help reduce this effect that the brainstem lesion from December of last year recede and possibly enable running to resume. However at this point, running no longer holds enjoyment for me. It just makes me feel sick.
Thinking upon this, and trying to consider that a change of direction looms (though I have no idea where that direction will take me), I have decided that a change in blog names must coincide. I am hopeful that this change will actually bring more people "into the game" by taking on a more inclusive attitude.
With that in mind, the blog formerly known as MultiSport vs Multiple Sclerosis, shall now be known as "MY Sport vs Multiple Sclerosis". Because it really doesn't matter what your sport is - just get out there and do something. Something is FAR better than nothing.
Thank you to all my supporters through the years and especially most recently. In just a short time, we've already raised more than $2000 for the National Multiple Sclerosis Society in our fight against MS. There's still time to donate. The 2-day, 150 mile ride is this coming weekend, though!
Feel free to pass this link along!
http://main.nationalmssociety.org/goto/MS-vs-MS
In the meantime: get out there and be active!
Tuesday, July 22, 2014
Working Link!
Here is a working link! Thank you all so much for your kindness and support. Already donations today are at $600 (started yesterday at $250). Let's keep it up! We can break $1000. And still the 50% matched contribution stands.
Monday, July 21, 2014
Short Notice, Next Adventure
Tuesday, July 8, 2014
The Pictures are In!!
Wednesday, May 28, 2014
The (Mostly) Sweetness of Success
The longer version goes something like this:
Race morning came. I won't say dawned, as we actually started swimming before dawn arrived. I went through the usual routine (homemade oatmeal, coffee - strong coffee - and filling water bottles). Gave Mom a hug and said thanks for coming (Dad wasn't awake yet), and headed off into the dark for the 3/4-mile walk to the transition site. A steady stream of fellow competitors headed in the same direction - eerily quiet except for the distinct boom boom boom of the disco where folks were still at it all night long. That and the intoxicated folks ambling back to their hotels. But the athletes quietly marched towards their day.
I wore my pre-race shirt from Athletes Lounge. Today, "Lounge" distinctly performed as a verb rather than a noun. The perfect thought headed into this athlete's day.
Bike all prepped for the day, transition bags all set (all handed in the prior day). I pumped my tires up, and headed off to use the port-o-john one last time before donning the wetsuit and handing in my pre/post race bag. Off to the water for the first time. I normally like to get into the water pre-IM week, but this time I really didn't care. It would be the temperature it would be, and it would be fine. I waited in the corrals with the other 2000 entrants, nervously chatting in numerous languages. I somehow managed to mingle in with a bunch of Irish (lots of them here), and was able to converse a bit. Nerves all around me, but none inside me. Perhaps some silver linings to participating, rather than racing, do exist!
My parents, who had flown all the way to watch, needed some estimate of my times so as to know when to be looking for me and/or worrying about me. I really had no idea, but guessed a 70-70minute swim , 6-7hour bike, and 4-4.5 hour run (10min, 1-2hrs, and 50-80 minutes slower than normal, respectively)
Finally we're released, and I amble into the water. I had reminded myself it would be a rough swim as my estimated swim time frame put me squarely in the busiest time in transition of an IM outside of Kona. Not much done other than maintaining position and avoiding drinking the ocean around the first of two laps, but right on target time-wise. The second lap had far fewer elbows, and while I would pass constantly that lap, I also stopped a few times to look around the bay at the volcanoes / hills that encircle the town of Playa del Carmen. The view from the water is always so different than from the land. But lingering wasn't an option as I a set of flailing arms and thrashing legs usually reminded me that there were 1000 people behind me all coming at me and wouldn't expect to find someone sight-seeing. With about 800m to go, I noticed I was getting tired - similar to how a normal IM would feel. Not exhausted in the swim, but ready to be done with it. 5 swims appears to be just enough swimming across 3 months to finish (not race, but finish) an IM swim for me. With a wetsuit, in buoyant ocean water, anyway.
I did find one silver lining to the MS! The recent tongue tingling and lip numbness I've experienced meant that for the first time ever swimming in salt water, I didn't notice any alteration in the sensation of my tongue and lips. Small perk, but life revolves around sliver linings sometimes.
Out of the water in 73 minutes.
Onto T1 - folks have wondered what the hell took me 18 minutes. For one thing, I didn't see any purpose in running this time other than not getting run over. I could stay to the side, though, so that wasn't an issue. For the first time ever, I changed completely - dried off, and put on a cycling kit rather than just racing the whole thing in the same clothes. Today I was all about comfort. I put on cycling gloves. Lots and lots of sunscreen (the stuff they used was amazing - it stayed on the entire ride! Maybe I just wasn't sweating enough...). Stopped to use the port-o-pottie, and took a picture of two of the swim exit. slowly jogged to the bike, and off I went (that's me in the red - crowded exit of T1).
I stopped fairly immediately when I saw my parents 1k into the bike. My Dad instantly wanted to know what I needed. I just calmly took my camera out, and took a photo. I hope it turned out. I think everyone at that point realized I really meant to just have fun today as nearly all around in the crowd laughed and cheered quite loudly.
About 5k into the bike, it became obvious it that the winds had found the island. I think maybe they tried to reshape it a bit that day. Oh well - I wasn't racing. It just meant I would be slower. Of course, that's the attitude to take when you are racing, as well. The winds fall into the category of "things I cannot control and thus won't expend frustrating energy on". Ordinarily I would simply alter my wattage target a bit and go. Today, I kept my wattage target, which was a complete guess anyway, and kept going. I would rest on the down hills rather than race them, and besides - I was going to stop to take pictures.
Which I did. As I said, 37 of them. Including photos of the guy who brought me coffee (though I didn't think of taking the picture of the coffee until it was gone) - a British guy named Paul. I had a few Irish guys recommend places I should take pictures as they had seen me stopping a few times. I did feel bad on occasion, in particular on the climbs, as I would stop and take a picture, then remount and slide right past those who seemed to be working rather hard. Maybe they were just in their zone. Maybe they were in their misery. It didn't matter to me - I was having a great time.
The windy descent I had previously had significant concern about was not nearly as bad as expected. It was fun, even. The straight descent right after it, however, was terrifying with huge, gusty cross-winds while going 40mph. Glad I left the disc wheel at home.
Onto the final big climb to Mirador del Rio - the defining road of Ironman Lanzarote with the 1500ft Famara Cliffs down to the ocean, overlooking an island just across the way - I was riding close to a support vehicle. I handed them my camera and had them take a few pictures of me. I REALLY hope those came out - it was stunning up there. After gathering my camera back, I zipped away passing folks again, still not feeling guilty.
Mostly tailwind then for a while, a climb right back into a headwind, then a cross-wind descent on terrible road surface, a quick jaunt through the vineyards (yes, they grow grape vines in the middle of the lava fields!), and it's back to town on a final twisty descent. Not feeling like I'd just ridden 112 miles, and wishing there was more riding to do. The one thing I wasn't looking forward to was the run, as I felt the most unprepared for that event, especially with it being last.
Bike split 6:29 (with 12minutes lost to stoppage time for pictures and coffee).
I later learned that it was widely reported to be the windiest day ever at Lanzarote - one of the windiest IM events in the world. Maybe it was a good day to have been just participating, as they didn't bother me at all. Another silver lining.
T2 was uneventful, but again I took my time. Changed completely again. Running shorts and a running jersey. Not overly concerned about how long it would take. Though I think the combined 30' in transition might have cost me first American. :)
The run. To my surprise, I had a good time. Chatted with yet another Irish guy for a while (who is also a physiotherapist) before he left me behind at an aid station. I walked a table or two of most aid stations simply to be sure I got the hydration and nutrition I needed. I wasn't sure what I was expecting. The sun did become rather hot by mid afternoon. Highs for the day were in the upper 70's. Not terrible, but not cold, either. The run consisted of 3 out-and-backs. The first two were longer 16km (10 mile) past the airport, and the last 10km (6.2mi) was along the same route but with a closer turn-around. The winds were nasty going out to the airport, and pushed you along coming home. The tailwinds also permitted significant heat to build-up, as you didn't get the cooling effect nearly as much.
After the first 16k, I was still having a good time:
The run did begin to take it's toll, though. At about 15 miles, I grew more and more concerned about my right knee as it really began to hurt behind the knee cap. Then I remembered I was a PT. I could figure something out. So I thought for a kilometer or so (I have to admit, my PT thinking cap had been left behind in the States), and recalled that I hadn't run this far since Kona, and that my muscles were undoubtedly tightening up. I stopped and stretched hamstrings, calves, and quads, and poof! Pain gone. For a while, at least. I'd have to stop once more with about 8k to go to stretch again, but this time it was a quick decision with a quick result.
I found myself using all the mental tricks I could think of as the race entered it's final 10k to keep going. I did end up stopping at my parents with 9km to go for my typical moment of self-pity, unsure I going further was really in my best interests or not. Quite clearly (internally, at least), I no longer found myself having much fun. Just pain and discomfort - just about everywhere. But I knew that sub 12hrs was possible (my one loose time goal for the day) if I could keep running. That thought kept me going. But the race face (literally) had found it's way to me, despite my goal for the day. I suppose that's the nature of an Ironman. Not an easy feat, regardless of your preparation. At some point it catches up with you.
Run time 3:40. I still have no idea where that came from. My friends remind me that I've been at this a long time, and have a huge base, let alone mental reserves to tap into. Perhaps they are right. I certainly don't recommend my recent training plan for anyone looking to finish an Ironman. But I have to admit, it is nice to be able to say - without a doubt - that I can finish an Ironman any day of the year. Even the hardest one on the circuit, on possibly the hardest day it's seen.
It makes the rewards all that much the sweeter.
Friday, May 16, 2014
Exit Plan A, Enter Plan B
running - all in the sun and the wind - will do that to a person. It would not only be irresponsible, but reprehensible of me to interfere in their race - regardless of my own "ambitions" for the day.
Tuesday, May 13, 2014
Ironman on the (sub-) Minimalist Plan. AKA: Tips Surviving Your First Ironman - or Just Maybe Your Best Ever
Thursday, April 24, 2014
It Finally Happened Today
Monday, March 17, 2014
The Path Through the Fog?
Quick post (sorry for all the reading at once!). I thought it best to break things up a little bit. Thank you for reading.
The search to understand the what, why, where consume me. I do not imply that this obsession remotely resembles a healthy preoccupation. And yet I stay up late searching, trying to put thepieces together. Surely someone has missed something. Surely the key sits there in front of me, ready to provide thatdesperately needed “Aha!” moment. It’s a terrible prospect - the thought of losing one’s mind.
Attempting to backtrack through my Wood, attempting to determine at least when I started entered the twilight, I recall a definitive downturn in September 2013. My training became more… dreaded; my performances became stagnant, if not faltering. With my the Ironman World Championships quickly approaching (mid-October), this faltering registered as par for the course, as I was knee deep in the hardest part of my training. But really it went deeper than that. I no longer wanted to race Kona. I just wanted to get it over with. In retrospect, my sense of burnout in doesn't really surprised me. I had trained hard for over a year, beginning with preparations to race Ironman New Zealand, where I qualified for Kona qualifier, in March of 2013. I trained harder than ever before; certainly so with regards to the day-in / day-out intensity. The proverbial fork had become well-planted in my flesh and more importantly, in my mind. While I took great satisfaction in having obtained the Kona starting line once more, the desire to suffer again - and severely in the case of racing an Ironman - had fled sometime during the summer.
"Regular" readers will recall that last June I did a half-ironman in Bend, Oregon (Pacific Crest) a few days after violent food poisoning in June - losing many pounds overnight. Having no appetite, and being severely dehydrated does not equate to a good race-week taper, in case anyone needs that advice. I contemplated not starting numerous times, including on the bus-ride to the start. I thought about dropping out numerous times on the bike, and regularly in the run. But I struggled on, digging deeper, going slower. The emotional depths to which I went, simply to finish ("racing" had been forgotten 10 miles into the bike), were unparalleled in my experience. It took literally everything my mind had to get me to the finish line. I am proud that I finished. Even if, again in retrospect, it was foolish to have even started.
Finish what you start.
Yet with Kona still approaching, I kept pushing across a couple more months of hard training. Not only did I continue to remind myself that my family had granted me the time and the mental energy to train hard for World Championships, they did so enthusiastically. I had also long-ago learned that you never know when, let alone if, you’ll ever get back - particularly true with the unpredictable nature of MS. More importantly, so many people had come to my aid in raising funds and awareness of MS, believing in my cause and in myself. I couldn’t let them down. Truly, I am happy to say that I feel I held my end of the promise. I am in their debt, and endlessly in the debt of my family. I am content with my Kona performance, if not satisfied.
My thoughts have begun to stray from triathlon. I have finally unearthed a potential source of my discontent across the past few years. It has taken quite some time, but I feel my priorities may need realignment. MS Fitness / Family / Career / then Sport. More percolation time should help develop the flavor of my needs.
With this realization, and with antidepressants, the fog has begun to lift, even if just a little. Ironman Lanzarote has begun to weigh ... differently on me. It approaches quickly - 2 months away now. I have put in 5 hours per week of training on average, and generally all at low intensity. I took a couple / few weeks off completely in February. I had competitive aspirations for IML in November and December. They then shifted towards being a participant rather than a competitor. My goal resides squarely in that corner now. I have said many times through the years that I am constantly in good enough shape to complete an Ironman any day of the year - maybe not quickly, but to the end. Lanzarote will test that supposition. Now it's simply a matter of training to make that experience as pleasant as possible. But I will finish what I start.
“If you’re going through hell, keep going.” Good advice from Churchill and Dante.
Alas, easier said than done.
Saturday, March 15, 2014
Black Dog - Foggy Wood
Quite a bit of time has passed since my last post. I am fairly regularly surprised to hear that folks I know (and some I don't) actually read my blog, and some are inspired by it. Will wonders never cease? Thank you for reading. I'm glad I can inspire.
Quite a bit of reflecion and soul-searching has taken place since my last post. The following post represents the time period between December 2013 and February 2014. More posts will follow. I'm afraid they may be less than inspirational. However the reality is that many of us - with MS and without MS - deal with some of the topics below on a daily basis. We usually just don't like to admit it to anyone - possibly even ourselves.
It has not been a fun few months.
Winston Churchill, made famous through his words, war, and drink, also seemingly struggled against bi-polar disorder. A condition characterized by dramatic, pendular mood swings ranging between highly energetic, manic phases to disparaging depression. Churchill referred to his depressive side as his “Black Dog”, harassing him through much of his life. It fascinates me that someone could earn a hallowed alcove in the Hall of Fame for World Historical Figures in the face of such a condition.
I suppose it should console me to find myself in such good historical company. But it’s not. Incomprehension of the catalyst impelling me on my journey doesn’t alter that I have, somehow, returned to my detested Foggy Wood. My brain has turned murky. A place where concentration yields headaches, maintaining a thought remains short-lived, and the ability to recall the appropriate word dubious. And my fatigue - the damnable fatigue - has become overwhelmingly ubiquitous; I am drained of energy, let alone motivation for anything and everything. Something in my mind changed along with my vision that Friday early last December.
Things there have finally begun to clear some. Now my eyes play tricks on me primarily when fatigued, when it’s foggy or rainy, or when I concentrate hard. When this happens, I’m reminded of when I took a ride in a high performance bi-plane in 2003. Rolling and banking through G-forces I have never otherwise experienced found me audibly grunting (between laughter) to keep my head as clear as possible. Now I occasionally find myself swearing and grunting when driving. I’m not afraid of losing control of my vehicle, nor worried that I’ll have an accident so much as feeling like my eyes want to focus on a point not quite the same as the one I’d like: very close, but not quite it. Watch through your rear-view mirror on a rough road, with the world easily decipherable, but not quite in focus as the mirror bounces around a bit - your eyes always playing catch-up. The world doesn’t move like that in my eyes, but the sense of inability to focus is similar.
All tests thus far continue to come back unremarkable. MRI: unchanged from last February. Optometry assessment: near perfect, right a little worse than the left, but time for low-power progressive lenses (hello 40’s!). Neurologist: probably vestibular issue. Ear Nose Throat MD: unremarkable (clinical) vestibular test, hearing almost normal, slightly diminished in the left - but generally, unremarkable. Blood work: pretty much normal. Low testosterone. OK, treating that. Otherwise I’m theoretically healthy as a horse. Full vestibular workup (“tilt-a-whirl”) and neurophthalmology appointments scheduled in March. Personally, I have begun to consider psychosomatic sources. I’ve tried to convince myself that what I’m experiencing in my head as I drive into work each day really exists only there: in my head. “I believe it’s in my head. I believe it’s in my head. I know it’s in my head.” I wish I could say it helped. Mabye I just don't believe it enough.
My wife requested on multiple occasions that I consider going back on antidepressents. Then one day she (nicely) insited. I could no longer disagree with her - the time had come, even if I was too stubborn to admit it. That little pill and I stared at each other for a long time before it passed my lips.
I think my mood has improved, but my vision issue it remains. Regardless of what the tests and MD’s otherwise indicate, something is most definitely wrong. I’m exhausted, and yet I cannot sleep. I am not motivated to train. Strike that, I do not even want to exercise. I am restless, and uninspired. Listless, I sit and wander the well-trodden pathways in my Foggy Wood.
The introspection continues.
Good Night.